Alzheimer’s Misunderstood: Breaking Down 10 Common Myths

Alzheimer’s Misunderstood: Breaking Down 10 Common Myths

Alzheimer’s disease is one of the most misunderstood medical conditions in our world today. Because it progresses slowly and touches so many layers of a person’s being—memory, personality, behavior—it’s often surrounded by fear, confusion, and misinformation.

At All Heart Home Care, we work with families throughout San Diego County who are navigating the emotional and practical challenges of Alzheimer’s. We know firsthand that the more you understand the truth, the better prepared you’ll be to care for your loved one—and yourself.

According to the Alzheimer’s Association’s 2025 Facts and Figures, an estimated 7.2 million Americans age 65 and older are now living with Alzheimer’s disease—a number projected to nearly double to 13.8 million by 2060. With so many families affected, separating fact from fiction has never been more important.

Let’s clear up some of the most common myths.


Myth 1: Memory loss is just a normal part of aging.

The truth: Some forgetfulness is normal as we get older. But Alzheimer’s is more than misplaced keys—it’s forgetting familiar names, struggling with language, getting lost on the way home, or repeating questions without realizing it.

When memory problems start to interfere with daily life, that’s a sign that something deeper is going on. Early diagnosis gives families the opportunity to plan, adapt, and access support—such as home care services from All Heart Home Care—before the disease progresses further.


Myth 2: Alzheimer’s and dementia are the same thing.

The truth: Think of dementia as the umbrella term—it refers to a group of symptoms affecting memory, thinking, and social abilities. Alzheimer’s is the most common form of dementia, accounting for 60-80% of cases, but there are others like Lewy body, vascular, and frontotemporal dementia.

Each type requires its own approach to care, which is why a proper diagnosis is so important. New diagnostic tools, including FDA-cleared blood tests, are making it easier than ever to distinguish among dementia types and ensure people receive appropriate treatment.


Myth 3: Alzheimer’s isn’t fatal.

The truth: Unfortunately, Alzheimer’s is a terminal illness. As it progresses, it damages more than memory—it affects vital functions such as swallowing, mobility, and, eventually, the ability to communicate and care for oneself. Deaths from Alzheimer’s have more than doubled since 2000, making it the seventh-leading cause of death in the United States.

This doesn’t mean there’s no hope. There is so much that can be done to ensure comfort, dignity, and connection in every stage. At All Heart Home Care, we support families throughout San Diego County with compassionate in-home Alzheimer’s care so loved ones can remain in familiar surroundings.


Myth 4: Only seniors get Alzheimer’s.

The truth: While age is a major risk factor—about 74% of Americans with Alzheimer’s are 75 or older—younger people can develop early-onset Alzheimer’s, sometimes as early as their 40s or 50s. Researchers estimate that about 200,000 Americans under 65 are living with younger-onset dementia.

This form tends to be more aggressive, and its signs are often misdiagnosed or overlooked. If something feels off, trust your gut. Seek an evaluation, regardless of age.


Myth 5: Alzheimer’s can be caused by medications.

The truth: There’s no scientific evidence showing that commonly used medications cause Alzheimer’s. That said, some medications can cause temporary memory issues or confusion, especially in older adults. It’s always wise to review medications with a healthcare provider.

Alzheimer’s itself is driven by complex brain changes involving the buildup of amyloid plaques and tau tangles—not caused by taking sleep aids or cholesterol medications.


Myth 6: You can’t diagnose Alzheimer’s until after death.

The truth: This myth is now outdated. While a definitive diagnosis once required examining brain tissue after death, remarkable advances in diagnostic technology have changed everything.

In May 2025, the FDA cleared the first blood test—the Lumipulse G pTau217/ß-Amyloid 1-42 Plasma Ratio—to aid in diagnosing Alzheimer’s disease. In October 2025, a second blood test (Elecsys pTau181) was cleared specifically for use in primary care settings. These blood tests measure key biomarkers that indicate amyloid plaques in the brain, offering a less invasive and more accessible alternative to PET scans and spinal taps.

Combined with cognitive testing, brain imaging, and comprehensive medical evaluation, doctors can now diagnose Alzheimer’s with considerable accuracy during a person’s lifetime. Early diagnosis means more time to plan, get support, and access treatments that can slow disease progression.


Myth 7: Vaccines increase your risk of Alzheimer’s.

The truth: This myth has been thoroughly debunked—and the reality is quite the opposite. A growing body of research suggests that certain vaccines may actually reduce the risk of dementia.

Recent studies have found:

Flu vaccination — Associated with a 17-40% reduction in Alzheimer’s risk, with greater protection linked to more frequent vaccination.

Shingles vaccination — Associated with a 20-53% reduction in dementia risk, with some of the strongest evidence to date.

Pneumococcal vaccination — Associated with up to 40% reduced Alzheimer’s risk in certain populations.

Researchers believe vaccines may help by reducing inflammation, preventing infections that can accelerate cognitive decline, and supporting overall immune function. Maintaining your overall health—by preventing illness through vaccines—actually helps protect your brain.


Myth 8: Artificial sweeteners cause memory loss.

The truth: There’s no conclusive evidence that sweeteners like aspartame cause Alzheimer’s. As with all things, moderation is key.

What does matter? The 2024 Lancet Commission on Dementia identified 14 modifiable risk factors that, if addressed, could prevent or delay up to 45% of dementia cases worldwide. These include managing high blood pressure, preventing hearing loss, limiting alcohol, maintaining a healthy weight, treating depression, staying physically active, avoiding smoking, and reducing social isolation.

A heart-healthy, brain-healthy diet—rich in vegetables, healthy fats, lean proteins, and whole grains—can support long-term cognitive health. But there’s no need to fear your diet soda.


Myth 9: There are no treatments that can slow Alzheimer’s.

The truth: This is no longer accurate. While there is still no cure, the treatment landscape has transformed dramatically in recent years.

In July 2023, the FDA granted full approval to lecanemab (Leqembi)—the first treatment proven to slow cognitive decline by clearing amyloid plaques from the brain. In July 2024, a second disease-modifying treatment, donanemab (Kisunla), received FDA approval. Clinical trials showed these treatments can slow disease progression by approximately 25-35% in people with early-stage Alzheimer’s.

These medications are specifically for people in the early stages of the disease, which is why early diagnosis is so crucial. They don’t reverse existing damage, but they can give people more time to participate in daily life and maintain independence.

Beyond medications, holistic care remains essential. Routine, emotional support, cognitive stimulation, and a safe environment can vastly improve quality of life at every stage.


Myth 10: Alzheimer’s is just “Type 3 diabetes.”

The truth: This theory has gained traction online, but it oversimplifies a complex disease. “Type 3 diabetes” is not an officially recognized medical or diagnostic category; it has not been adopted by major health organizations such as the World Health Organization or the American Diabetes Association.

That said, research shows meaningful links between metabolic health and brain health. Studies indicate that people with Type 2 diabetes have a 50-90% higher risk of developing dementia compared to those without diabetes. Insulin resistance in the brain appears to contribute to some of the pathological processes seen in Alzheimer’s, including amyloid buildup and tau tangles.

The takeaway? Managing conditions such as diabetes and heart disease may help reduce risk or slow disease progression. But Alzheimer’s isn’t simply “caused” by diabetes—it’s a complex disease influenced by genetics, lifestyle, and environmental factors throughout life.


The Power of Knowledge, the Strength of Support

Myths can lead to stigma, fear, and delay in getting help. But the truth? Families facing Alzheimer’s need real information, loving support, and practical tools to navigate what’s ahead.

At All Heart Home Care, we’re here to walk that road with you—providing skilled, compassionate in-home care services for every stage of Alzheimer’s. Whether you’re just starting to notice changes or are deep in the caregiving journey, you’re not alone.


How Home Care Can Help Alzheimer’s Patients

If you or a loved one has been diagnosed with Alzheimer’s disease, it’s important to obtain some help around the home. Our caregivers can help in many ways, including:

Performing domestic duties — Light housekeeping, laundry, and maintaining a safe environment.

Meal preparation — Delivering food or cooking nutritious meals in your home.

Personal care assistance — Helping with bathing, grooming, and hygiene.

Transportation — Taking your loved one to medical appointments and social engagements.

Medication reminders — Ensuring medications are taken on schedule.

Companionship and supervision — Providing meaningful engagement and ensuring safety throughout the day.

Respite for family caregivers — Giving you the breaks you need to recharge and care for yourself.


References

  1. Alzheimer’s Association: 2025 Alzheimer’s Disease Facts and Figures
  2. FDA: First Blood Test Cleared for Diagnosing Alzheimer’s Disease (May 2025)
  3. Alzheimer’s Association: Lecanemab (Leqembi) Treatment Information
  4. Alzheimer’s Association: Donanemab (Kisunla) Treatment Information
  5. The Lancet: Dementia Prevention, Intervention, and Care: 2024 Report
  6. Age and Ageing: Association Between Vaccinations and Risk of Dementia (2025)

We’re Here to Help

If you have any questions about Alzheimer’s disease or home care services, contact All Heart Home Care at (619) 736-4677. As a veteran-owned, nurse-led agency serving San Diego County since 2014, we offer in-home consultations and would love to discuss the many home care services we provide.

You don’t have to face this journey alone. We’re here to help with all your home care needs.

Share:

More Posts

About the author

Eric Barth, co-founder and CEO of All Heart Home Care San Diego

Eric Barth

CEO, All Heart Home Care

Eric Barth is the founder and CEO of All Heart Home Care™, an award-winning San Diego agency dedicated to providing compassionate, personalized in-home care for seniors. As the writer behind the All Heart Home Care blog, Eric shares insights and stories drawn from years of hands-on experience leading one of San Diego’s most trusted home care teams.

Additional FAQ's on Digital Home Care System

Yes. HITRUST CSF Certified security—same gold standard hospitals use. More secure than paper.

Extremely rare (99.9% uptime), but caregivers can work in offline mode if connectivity is temporarily lost. Care continues without interruption. Documentation syncs automatically when connection returns.

Caregivers document throughout their shift in real-time. Notes are typically finalized and visible in Family Room within minutes of the caregiver clocking out.

We can set up Family Room accounts for as many family members as you want—local siblings, children in other states, anyone you authorize. Everyone sees the same information. No limit on number of accounts.

Yes. Family Room includes secure document storage. Upload medical records, insurance cards, POLST forms, medication lists, doctor’s instructions, photos—anything important. All authorized family members can access these documents. No more searching for forms.

We update the digital care plan immediately, and all caregivers receive instant notification of changes. This is one of the biggest advantages over paper—updates reach everyone simultaneously, not gradually over days or weeks.

Absolutely. Family Room is a tool for families who want it, not a replacement for human connection. We’re always reachable by phone at (619) 736-4677. Many families use both—portal for quick updates, phone calls for detailed conversations.

We train every caregiver on the WellSky mobile app before their first shift. The app is intuitive—designed specifically for caregivers, not engineers. If someone can text and use GPS navigation, they can use our caregiver app. And we provide ongoing support.

Yes. The Family Room care calendar shows upcoming shifts with caregiver names and times. You’ll know exactly who’s coming and when. No more surprise caregiver switches.

Use the two-way messaging feature in Family Room. Send your message, and the caregiver receives an instant notification on their mobile app. They’ll see it and can respond or confirm receipt immediately.

Yes. All notes are searchable. Want to see every mention of “appetite” from the past month? Type it in the search bar and find all relevant notes instantly. No more flipping through pages of handwritten entries.

You can access the complete care history from the day Family Room access began. Review notes from last week, last month, or since care started. Historical data helps identify patterns over time.

Family members cannot delete caregiver documentation—that’s protected and maintained by All Heart for record-keeping purposes. You can delete your own uploaded documents, but we can often recover those if needed within a certain timeframe.

With your authorization, we can provide limited Family Room access to healthcare providers. This allows better coordination between home care and medical teams. You control exactly who has access and what they can see.

Family Room works both ways. You can access it through any web browser (Chrome, Safari, Firefox, Edge) on your computer, or download the mobile app for easier access on your phone or tablet. Your choice.

All authorized Family Room users see the same care information—we can’t create different access levels for different family members. However, you (as the primary contact) control who gets Family Room access in the first place. If family dynamics are challenging, you decide who receives login credentials.

The messaging system shows when messages are delivered and read. You’ll see confirmation that the caregiver received and opened your message. For critical information, you can also call our office to ensure the message was received.

Yes. You can print individual shift notes, date ranges, or specific types of documentation (like Change of Condition reports) directly from Family Room. Useful for doctor appointments or insurance purposes.

If your loved one transitions to hospice, hospital, or another care setting, we can maintain your Family Room access for a transition period so you have complete records. After care ends, we provide a final data export if requested, then access is closed according to your wishes and legal requirements.

Yes. Family Room is accessible from anywhere with internet connection. If you’re traveling abroad, you can still check on your loved one’s care. The system works globally.

Family Room doesn’t support selective information sharing—all authorized users see the same care documentation. For private family communications, you’d need to use personal email, phone, or text outside the Family Room system.

Change of Condition reports automatically alert you when caregivers document significant health changes. For custom alerts (like specific behaviors or situations), talk to our office—we may be able to add special flags to your loved one’s care plan that trigger notifications.

We typically set up Family Room access during your initial care planning meeting, before the first caregiver shift. You’ll have login credentials and a brief tutorial on how to use the portal. Most families are viewing their first shift notes within 24 hours of care beginning.

Complete Security & Privacy Information

HITRUST CSF Certification - What This Means

HITRUST CSF (Common Security Framework) is the most rigorous security certification in healthcare. It's harder to achieve than HIPAA compliance alone. This certification requires:

Why it matters: If it’s secure enough for hospital patient records, it’s secure enough for your loved one’s care information.

Bank-Level Encryption Explained

Data in Storage (At Rest):

Data in Transmission (In Transit):

What this means: Even if someone intercepted the data (extremely unlikely), they would only see scrambled, unreadable information.

Strict Access Controls

Who Can See What

Family Member Access:

Caregiver Access:

Staff Access:

Audit Trail:

HIPAA Compliance - Federal Protection

The Health Insurance Portability and Accountability Act (HIPAA) establishes federal standards for protecting health information. Our compliance includes:

Privacy Rule Compliance:

Security Rule Compliance:

Breach Notification:

Business Associate Agreements:

Continuous Backup & Disaster Recovery

Automated Backups:

Redundancy:

Disaster Recovery Plan:

What this guarantees: Your loved one’s care information is never truly lost. Even if an entire data center were destroyed, complete backups exist elsewhere.

99.9% Uptime Guarantee

What “99.9% uptime” means:

Monitoring:

If the system goes down:

Multi-Factor Authentication (Optional)

For families who want extra security, we can enable multi-factor authentication (MFA):

Mobile Device Security

Caregiver Phones:

Your Devices:

Security Incident Response

In the extremely unlikely event of a security concern:

Digital vs. Paper Security Comparison

Security Concern
Paper Binders
WellSky_Color

Who can read it?

Anyone who enters the home

Only authorized users

Can it be lost?

✔︎ — permanently

— backed up continuously

Can it be damaged?

✔︎ — spills, fires, floods

— stored digitally

Is access tracked?

✔︎ Access logged & audited

Encryption protection?

✔︎ — bank-level encryption

Updates reach everyone?

— printing/distribution delays

✔︎ — instant notification

Survives disasters?

✔︎ — redundant backups

HIPAA compliant?

— difficult to prove

✔︎ — certified & audited

Can be accidentally discarded?

✔︎

— requires a password

Verdict: Digital is significantly more secure than paper in every measurable way.

Common Security Questions

"What if I forget my password?"

Secure password reset process via email or phone verification. We verify your identity before resetting access.

"Can hackers access the system?"

Multiple layers of security make unauthorized access extremely difficult. Regular penetration testing simulates attacks to identify and fix vulnerabilities before hackers can exploit them.

"What if my phone is stolen?"

Change your password immediately from any other device. The thief would still need your password to access Family Room.

"Can All Heart staff see my credit card information?"

No. Payment processing is handled by a separate, PCI-compliant payment processor. We never see or store your full credit card number.

"What happens to the data if I stop using All Heart?"

Your data is retained according to legal requirements (typically 7 years for healthcare records), then securely deleted. You can request a copy of your data at any time.

This isn’t just secure—it’s among the most secure systems available in healthcare.

Your information is safer in our digital system than it ever was in a paper binder sitting on a kitchen counter.

Complete Care Plan Contents:

Care Goals & Priorities

Emergency Contact Information

Medical Conditions & Health History

Mental Health & Cognitive Status

Medications & Supplements

Mobility & Transfers

Personal Care Routines

Meal Preparation & Dietary Needs

Daily Routines & Schedules

Activities & Engagement

Home Environment Details

Transportation & Driving

Additional Important Information

This comprehensive information ensures every caregiver provides consistent, personalized care from day one.

Tracking health changes that matter.

The Change of Condition form documents significant shifts in your loved one’s health—new symptoms, changes in mobility, behavioral differences, or improvements in their condition. This isn’t about minor day-to-day variations; it’s about meaningful changes that physicians, families, and caregivers need to know about.

Why have a separate form for this?

Instead of searching through weeks of caregiver narratives to find when symptoms started or conditions changed, this form puts all significant health changes in one easy-to-reference place. When doctors ask “when did the difficulty walking begin?” or family members want to understand the progression of a condition, you’ll have clear, dated documentation right at your fingertips.

What gets documented:

Each entry includes:

Why this form matters:

Early detection changes outcomes. When caregivers notice something different—increased confusion, difficulty walking, loss of appetite, or even positive improvements like better mobility—documenting it immediately allows for faster responses.

Your family stays informed about meaningful health changes. Physicians receive accurate updates during appointments instead of relying on memory. Incoming caregivers know exactly what’s changed and what new precautions or assistance your loved one needs.

One form. Complete health timeline. Better care.

Whether tracking a temporary change after a fall or documenting the progression of a chronic condition, the Change of Condition form creates a clear health timeline. This helps everyone—doctors, family members, and our San Diego caregiver team—understand how your loved one’s needs are evolving and respond appropriately.

Proactive monitoring isn’t just good practice. It’s essential senior care.

How the Caregiver Narrative works.

Each caregiver documents their shift using a simple timeline format that captures the essential details of your loved one’s day. This structured approach ensures consistency across all caregivers and makes information easy to find.

What we document in every narrative:

Narrative Format:

Each entry follows this structure:

Why this format works:

This timeline approach provides clear, chronological documentation that’s easy for incoming caregivers to read and understand. Instead of wondering what happened during the previous shift, they can see exactly what your loved one ate, how they felt, what activities they enjoyed, and any health changes observed.

One record. Every shift. Complete continuity.

Whether care is short-term, long-term, or evolving, the Caregiver Narrative ensures nothing gets missed and nothing gets repeated. Your family can review the journal at any time during visits, or we can share photos of recent narratives with long-distance family members who want to stay connected and informed.

Complete transparency and peace of mind, right when you need it.

Your loved one's complete care roadmap, now available digitally.

The All Heart Customized Care Plan is completed during your initial assessment and tailored to your loved one’s specific needs, preferences, mobility level, and safety requirements.

Now fully digital and accessible on every caregiver’s phone.

We’ve gone paperless. Your care plan is accessible through our digital platform—caregivers reference it anytime, anywhere. Updates happen in real-time, so when something changes, every caregiver sees it immediately.

What's included:

Care goals, emergency contacts, medical conditions, mental health & cognitive status, medications & supplements, mobility & transfers, personal care routines, meal prep & dietary needs, daily routines, activities & engagement, and home environment details.

One plan. Every caregiver. Consistent care.

This digital approach ensures every San Diego caregiver has the same accurate, up-to-date information from day one—promoting safety, continuity, and person-centered care.

See how we organize care information. This form becomes your loved one’s digital care roadmap.