Strong, Capable, Supported: Living Independently with Parkinson’s
For many individuals with Parkinson’s disease, living alone is a reality that offers both freedom and challenges. While it can be empowering to maintain your independence, it’s important to know that you don’t have to manage everything on your own. At All Heart Home Care, we believe that support and planning make all the difference when it comes to aging safely and confidently at home.
The Emotional Landscape of Living Alone
Coming to Terms with Your Experience
If you live alone with Parkinson’s, your experience may feel quite different from someone who shares their home with a partner or caregiver. That’s okay. Every person’s journey with PD is unique. Give yourself space to accept your circumstances and remember that your path—and your voice—matter.
Combating Loneliness and Isolation
Solitude can offer independence, but it may also bring moments of loneliness. If you find yourself feeling isolated, tools like AARP’s Connect2Affect can help you identify signs of social isolation. And if you’re feeling persistent sadness or fatigue for several days, it might be time to check in with your doctor about depression. Mental health support is available through counseling, support groups, and your care team.
Building a Circle of Support
Living alone doesn’t mean you are alone. There are people who care and want to help. Your network might include:
- Family and friends
- Neighbors and coworkers
- Medical professionals
- Therapists or counselors
- Faith leaders or communities
- Local or virtual support groups
- And yes, even pets, who can provide companionship and emotional relief. Register your pet at: Emotional Support Animals
Staying Connected from Home
There are so many ways to maintain connection, even from the comfort of your own home:
- Join a support group. Many now offer virtual meetups so you can connect without leaving home. Such as: PDConversations.
- Check out the PD Solo Network. This virtual space is built for people with Parkinson’s who live alone. It’s a place to exchange ideas, resources, and encouragement.
- Volunteer your time or skills. Sites like VolunteerMatch can help you find ways to contribute and feel engaged.
- Attend online events or webinars. Look for wellness sessions, educational talks, or Parkinson’s Foundation events like “Wellness Wednesdays.”
- Explore community offerings. Whether it’s a local library event or town meeting, showing up builds connection.
- Move your body. Fitness Fridays and other online exercise programs are a great way to stay active and connected.
- Chat services. Platforms like Well Connected offer opportunities to meet new people through conversation.
Practical Tips for Independent Living with Parkinson’s
Set Up Your Space for Success
Living alone means you can design your environment to suit your needs. Keep important items within easy reach, and make sure your home setup supports your mobility.
Use a Home Safety Checklist
Consider using a safety checklist or asking your doctor to recommend a home safety assessment to identify and reduce risks.
Keep Helpful Tools Handy
Simple tools like a pair of pliers can help you open jars or packaging more easily.
Plan Your Days Around Your Energy
Schedule your most important tasks during the time of day when you feel your best. Use timers to keep medication routines on track. Try not to over-schedule—plan for both “good” and “tough” days.
Lean Into Your Support System
Even if you can manage independently, it’s okay to ask for help. Save your energy for the things that bring you joy. Keep a list of people you can reach out to for assistance when needed.
Consider a Medical Alert Device
These devices are a great way to maintain safety and peace of mind. They provide immediate help at the push of a button in case of emergency.
Look Into Transportation Options
If driving isn’t safe or possible, explore public transit, ride-sharing, or community shuttle programs.
Planning Ahead for Peace of Mind
Living alone comes with a responsibility to look after yourself—both now and in the future. It’s never too early to start thinking ahead. Consider what type of care environment you’d prefer later in life. Would you choose in-home care, assisted living, or another arrangement?
You might also consider assigning a trusted individual to act as your health care proxy. This ensures someone can speak on your behalf if you become unable to make medical decisions.
If daily tasks become difficult or unsafe, asking for help doesn’t mean giving up independence. In fact, choosing the right kind of support allows you to stay independent longer.
We’re Here to Support You
At All Heart Home Care, we serve clients across San Diego County who are living alone with Parkinson’s. Our caregivers provide support with everything from personal care and medication reminders to companionship and home safety. You don’t have to walk this journey alone.
Let us help you continue living life on your terms—with dignity, support, and heart.
