For many individuals with Parkinson’s disease, living alone is a reality that offers both freedom and challenges. With nearly 90,000 new diagnoses each year in the United States and an estimated 1.1 million Americans currently living with PD, more people than ever are navigating daily life while managing this progressive condition. While maintaining independence can feel empowering, it’s important to know that support and smart planning make all the difference when it comes to aging safely and confidently at home.
At All Heart Home Care, we believe that living alone doesn’t mean going it alone. With the right strategies, resources, and support network, you can continue living life on your terms.
The Emotional Landscape of Living Alone
Coming to Terms with Your Experience
If you live alone with Parkinson’s, your day-to-day experience may feel quite different from someone who shares their home with a partner or caregiver. That’s okay. Every person’s journey with PD is unique. Give yourself space to accept your circumstances and remember that your path—and your voice—matter.
Understanding the Mental Health Connection
Research shows that depression and anxiety are extremely common in Parkinson’s, affecting approximately 50% and 40% of people with the condition, respectively. According to the Parkinson’s Foundation Outcomes Project, mood and mental health have an even greater impact on quality of life than motor symptoms. What’s important to understand is that these aren’t simply reactions to having a chronic illness—they’re often caused by the same brain chemistry changes that affect movement. Depression and anxiety can emerge at any time, and about 80% of people with Parkinson’s report at least one mental health concern during their journey.
If you’re experiencing persistent feelings of sadness, loss of interest in activities you once enjoyed, excessive worry, or fatigue lasting more than five days over a two-week period, reach out to your medical team. These symptoms are highly treatable through medication, cognitive behavioral therapy, exercise, and counseling. Tools like AARP’s Connect2Affect can help you identify signs of social isolation before they become more serious.
Building a Circle of Support
Living alone doesn’t mean you are alone. There are people who care and want to help. Your support network might include:
- Family members and close friends
- Neighbors and former coworkers
- Medical professionals, including movement disorder specialists
- Mental health counselors or therapists familiar with chronic illness
- Faith leaders or spiritual communities
- Local or virtual Parkinson’s support groups
- Pets, which provide companionship and emotional comfort—you can register a pet as an Emotional Support Animal
Staying Connected from Home
Technology has opened remarkable opportunities for people with Parkinson’s to stay connected, access expert care, and participate in wellness programs—all from home. Many virtual initiatives launched during the COVID-19 pandemic have continued and expanded due to their success and popularity.
Ways to Stay Connected:
✓ Join a virtual support group — Many offer regular meetups where you can connect with others who understand your experience. PDConversations offers peer-led discussions.
✓ Connect with the PD Solo Network — This virtual community is specifically designed for people with Parkinson’s who live alone. It’s a safe space to exchange ideas, resources, and encouragement with others navigating similar challenges.
✓ Attend online wellness programming — The Parkinson’s Foundation offers PD Health @ Home programs, including Wellness Wednesdays and Fitness Fridays with expert-led exercise, mindfulness sessions, and educational webinars.
✓ Volunteer your time and skills — Giving back builds purpose and connection. Sites like VolunteerMatch can help you find virtual or local opportunities.
✓ Explore phone-based connection services — Well Connected offers telephone-based programs where you can meet new people through conversation, classes, and discussion groups—no computer required.
✓ Try telemedicine for specialist care — Video visits with neurologists and movement disorder specialists are now widely available. Research shows telemedicine delivers high patient satisfaction and clinical outcomes comparable to in-person visits, while reducing travel burden. Services like Synapticure offer comprehensive virtual neurological care across all 50 states.
New Technology for Independent Living
The technology landscape for Parkinson’s management has transformed significantly in recent years. Wearable devices, smartphone apps, and specialized tools now offer continuous, real-time monitoring of both motor and non-motor symptoms—supporting personalized treatment and more accurate tracking of disease progression.
Helpful Technologies to Consider:
• Symptom Tracking Apps — The American Parkinson Disease Association offers a free Symptom Tracker for iPhone (available in English and Spanish) that records motor and non-motor symptoms, includes an interactive medication tracker, and creates reports to share with your care team.
• Medical Alert Systems with Fall Detection — Given that approximately 60% of people with Parkinson’s fall each year (double the rate of age-matched peers), wearable alert devices with automatic fall detection can provide peace of mind and rapid emergency response.
• FDA-Approved Wearables — Several devices are now conditionally recommended for remote Parkinson’s monitoring, including PDMonitor, Personal KinetiGraph (PKG), STAT-ON, and Kinesia 360. These track tremor, bradykinesia, dyskinesia, and gait in daily life and share data with your healthcare team.
• Smart Shoes for Gait — FDA-approved NUSHU smart shoes use real-time vibrotactile feedback to analyze gait and provide instant cues, helping with freezing episodes and mobility challenges.
• Speech Aids — Devices like SpeechVive automatically trigger the brain to speak louder and more clearly, improving communication for those with speech difficulties. It’s covered by Medicare, the VA, and many commercial insurance plans.
• Smartwatch Integration — Apps like NeuroRPM and Strive PD connect with Apple Watch to track the complete range of PD symptoms, set medication reminders, and communicate data to care providers.
Practical Tips for Independent Living
Set Up Your Space for Success
Living alone gives you the freedom to design your environment around your specific needs. Work with your doctor to schedule a Home Safety Evaluation—an in-home occupational therapist assessment that provides personalized recommendations. Use the Parkinson’s Foundation Home Safety Checklist to identify and reduce risks.
Key modifications to consider:
- Install grab bars in bathrooms and along hallways
- Remove loose rugs and tripping hazards
- Improve lighting throughout your home, especially in hallways and stairways
- Arrange furniture to create wide, clear walking paths
- Keep frequently used items within easy reach at waist height
- Choose chairs with firm cushions, straight backs, and sturdy armrests
- Consider single-floor living arrangements if stairs become challenging
Plan Your Days Around Your Energy
Schedule your most important tasks and activities during “on” times when medications are working best and you typically feel your strongest. Use timers or smartphone apps to keep medication routines on track—consistency is crucial for symptom management. Try not to over-schedule by planning for both “good” and “tough” days.
Keep Helpful Tools Handy
Simple adaptive tools can make daily tasks easier:
- Weighted utensils and easy-grip cups for meals
- Button hooks and zipper pulls for dressing
- A pair of pliers to help open jars and packaging
- Large-button phone adapters and voice amplifiers
- Smaller containers for frequently used items (easier to handle than gallon jugs)
Prioritize Fall Prevention
Falls are a major source of disability in Parkinson’s, with risk factors including prior falls, freezing of gait, postural instability, orthostatic hypotension (blood pressure drops when standing), and cognitive changes. Protect yourself with these strategies:
✓ Take your time — Move slowly and deliberately when sitting, standing, or turning corners.
✓ Widen your stance — Take bigger steps for better stability.
✓ Keep hands free — Limit distractions and avoid multitasking while walking.
✓ Use fall detection technology — Medical alert systems can bring help quickly in emergencies.
✓ Exercise regularly — Balance training, strength exercises, and physical therapy are among the most effective fall prevention strategies.
✓ Stand up slowly — Rise in stages to prevent blood pressure drops that can cause dizziness.
Lean Into Your Support System
Even if you can manage independently, it’s okay—and wise—to ask for help. Save your energy for the things that bring you joy. Keep a list of people you can reach out to for assistance when needed, and don’t wait until you’re overwhelmed to use it.
Explore Transportation Options
If driving isn’t safe or possible, research alternatives before you need them:
- Public transit systems with accessibility features
- Ride-sharing services like Uber and Lyft
- Community shuttle programs for seniors
- Medical transportation services covered by Medicare or Medicaid
- Volunteer driver programs through local nonprofits
Planning Ahead for Peace of Mind
Living alone comes with a responsibility to look after yourself—both now and in the future. It’s never too early to start planning your care preferences. Consider what type of care environment you’d prefer as your needs change. Would you choose in-home care, assisted living, a continuing care retirement community (CCRC), or another arrangement?
Important planning steps:
✓ Designate a health care proxy — Assign a trusted individual who can speak on your behalf if you become unable to make medical decisions.
✓ Document your wishes — Complete advance directives and share them with your medical team and loved ones.
✓ Visit care options early — Tour facilities before a transition becomes necessary. This reduces stress and allows time for thoughtful decisions rather than “starting cold” after a hospitalization.
✓ Learn about palliative care — Familiarize yourself with supportive care options, including hospice, so you know where to turn if needs arise.
✓ Consider a Senior Move Manager — These professionals can help with decisions and logistics if and when relocation becomes necessary.
Remember: asking for help doesn’t mean giving up independence. In fact, choosing the right kind of support at the right time allows you to stay independent longer.
We’re Here to Support You
At All Heart Home Care, we serve clients across San Diego County who are living alone with Parkinson’s disease. Our compassionate caregivers provide personalized support, including personal care, medication reminders, companionship, exercise encouragement, and home safety. We understand the unique challenges of living with PD and are here to help you maintain your independence and access the support you need.
You don’t have to walk this journey alone. Call us today at (619) 736-4677 to learn how we can help you continue living life on your terms—with dignity, support, and heart.
References
- Parkinson’s Foundation Statistics — Current U.S. prevalence, incidence, and healthcare cost data
- Parkinson’s Foundation: Depression — Mental health prevalence and treatment approaches
- Parkinson’s Foundation: Fall Prevention (2024) — Fall statistics and prevention strategies
- Parkinson’s Foundation: Living Alone — Resources and guidance for independent living
- Frontiers in Neurology (2024): Commercial Symptom Monitoring Devices — Overview of FDA-conditionally recommended wearables
- Michael J. Fox Foundation: Depression, Anxiety, and Parkinson’s — Psychotherapy and mental health care guidance



